Diabetes and Kids

clemsonjeep said:

Yessir...it's a head scratcher for sure. I still remember standing in the kitchen at our house after leaving the doc in the box that first laid the diagnosis on us...I stood there and told my parents "I don't believe a word they're saying, there's no way I have diabetes!"

I regularly get comments from people while I'm out to eat or at a work conference when I've got a plate full of carb-rich foods saying "you shouldn't eat that...you're diabetic". I try to tell em they're wrong and explain why, but it's obvious they don't get it. So I just enjoy every carb in front of me and dose up on insulin.

Bottom line...her body isn't any different than anyone else's when it comes to what she can eat. She just has to be mindful of what it is she's eating with an idea of her activity level for the foreseeable future and adjust accordingly.

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I HATE when people see me with my pump and say "You must be bad diabetic" or black folks say "You must got the sugar real bad". You guys will figure this out. My tinfoil hat side says that diabetes is cured, but it is way to good of business to have us hooked on insulin for life.....It is Beyonce and JayZ and all their illuminati friends fault.

Lmao ya'll crazy, you must got the sugar real bad.

Yes it's true I'm beating my brain to death not for a cure really but just to figure out how a particular kiddo gets it.

While driving in traffic I'll listen to biologists studying it and conferences from researchers trying to get money for more research etc.

I came across one woman who is doing all kinds of lab tests. With mice. No surprise

What caught my eye was that all the doctors at the hospital said "we don't know how you get it and you can't prevent it"

Yet she showed a mouse that had type 1 super hero syndrome, then a pic of the same mouse that she used adipose fat tissue under the skin to take the place of insulin.

My question is, how'd she infect the mouse with type 1 and how'd she come across the genetic make up that would be susceptible to type 1 ?? Yet we don't know where it comes from or how you get it?

Anyway yeah it's consuming my brain. More than anything because more than a million Americans have it and there's a shart ton of money being directed toward management rather than prevention.

Just interesting, being that it happens to healthy young people typically.

Again I want to say thank you to you guys for sharing your experience and support with me. It helps a ton and means a great deal.

Especially when none of you guys know me personally.

Thank you

So a little update, just like all of the type 1s here she is doing great. Feeling great but just has to be poked with a needle 6 times a day and all of the new changes that come with that.

I spend every day researching, reading articles published by biologists all over the world. Surgeons, doctors, independent studies. All in my spare time at lunch and such.

Not because I'm looking for a cure but because I think it's totally preventable. I think today's condition is man made. I feel strongly that it involves 2 multi billion dollar industries that absolutely will not be allowed to shrink or be held accountable because of the staple they have become in our economies.

It's freakin scary guys. The millions of people that have type 1 and the level of growth in just a decade, it's like the plague. Yet the treatment and management industry is who is benefiting from it.

Creating a life long dependence on man made products or else you freakin die !!!

So anyway, daughter is doing great which nobody here doubted.

Though I'm digging deep and I'm trying to figure out at what point it happened and I'm working like crazy to figure out how to keep your kids from getting it.

The scariest part is what I'm finding to be the cause and the only way to prevent it is for parents to be crazy diligent about precautions.

That in its self is something completely lost in our culture now. Parent responsibility.

So stay tuned, I'm gonna find it

clemsonjeep said:

That being said...I'm curious about her...as well as the others here that have Type 1. How many of you grew up rarely being sick? I mean how many of you never missed a day of school...very rarely have to use sick leave for yourself...etc.

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I had the flu once when I was 8. Have never had it again in my life. I've never had a flew shot. My girls are identical. We get colds from time to time but thats it. We have zero allergies in a state where EVERYBODY complains about them.

I can't tell you the last time any one of us threw up. My 6 year threw up once at the hospital after diagnosis, because she was so nervous and scared. The look on her face was priceless. She didn't even know how to throw up. It was interesting if that makes sense.

The more I learn though is that this is very preventable. There is absolute truth in the fact that it follows a bacterial infection. Not viral. It follows a high fever for days. A majority of the time it's fall or winter. To which a parent gives Motrin/Ibuprofen which is shown to weaken the lining of the stomach and intestines. Which is why they recalled Motrin a few years ago because the dosage was too high, so they claim.

But that's just when it's happening.

Leading up to the assault is vitamin D deficiency. Inactivity, indoors and away from sun exposure for extended periods.

Then comes the correlation with dairy. Specifically the bacteria protein that closely matches the signature of beta cells in the pancreas. To which your white blood cells recognize as the same threat. A threat your white blood cells never forget. This is the reason for the honeymoon period. It's also why a pancreas transplant can never work permanently on its own.

Once the white blood cells have seen the threat, they don't stop, ever. When the beta cells make insulin, the blood cells choke them.

Where vitamin D comes in is the fact that high levels of vitamin D build a strong barrier around the beta cell pocket. Protecting them from threats.

So anyway, I wanted to answer your question about our family health and the ties that biologists are making between vitamin D levels that are crazy low in our culture today, the consumption of dairy and how asinine it is that we continue to do it. As well as the connection between your location in the world and explosion of type 1 in other countries. These are recent problems.

The most discouraging thing of all is until you live type 1, you'll never change a cultural habit that has been ingrained in our lifestyles since before we were born.

Yet if you sat down with every type 1 super hero and asked them "If I told you that if you quit consuming dairy and took vitamin D supplements from birth, you have a 87% chance of preventing type 1 that you now live with for the rest of your life"

What would they say?

Very interesting. Dairy in general, even cheese? Or mainly milk?

All dairy. Soon as you look at every label on what you eat

It becomes real. In the fact that it's the hardest thing you ever may do because it's in everything we eat almost

Primarily in the udder down. Anything that comes out of that tit

The consumption of red meat is something we are all familiar with. Though it hasn't been associated with the first development of type 1 in a civilization. It was the introduction of milk based baby formula.

So that says to me it is a bacteria involved in lactation of the species

My wife has type 1. She got it at 10 yrs old. Similar story to others with being thirsty and then spending a few days or more in the hospital with crazy high blood sugar. She is 42 yrs old now, and doing fine. She works hard to take good care of herself and keep it under control. She can pretty much do anything she wants, but has told me scuba diving is something she thinks would not be safe since she couldn't get to the surface right away if she felt her sugar going low while down deep. She recently upgraded to the latest model Medtronic closed loop pump. She has no family history of Type 1, and there is no history in my family either. I thought it could be hereditary, and therefore have always been worried about my son who is 8 yrs old .

drkelly said:

She has no family history of Type 1, and there is no history in my family either. I thought it could be hereditary, and therefore have always been worried about my son who is 8 yrs old .

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Ask her what time of year she went to the hospital?

As you should be. I'll share what I've found with you in hopes it will inspire you to make a change.

I believe 100% that it is preventable. I'm really starting to feel in my gut and I'm positive I will discover the data that the hereditary link is actually a vitamin D deficiency. Which makes the pancreas vulnerable to the attack of the T cells that are released by the thymus.

So in short, it's the bacteria protein from dairy that gets into the blood stream and is the infection, causes the fever and normal white blood cell build up and attack. Then it's the weak organ and cell protection (that healthy levels of vitamin D protect against) that allows the T cells to attack the beta cells because they share the same signature that the T cells have been taught to recognize as the bacteria.

So truly putting your child on a 1,000iu per day and increasing to 2,000iu every other day Vitamin D especially in the winter time can make a huge difference in his or her or your chances of getting type 1.

If you are skeptical, go to the doctor and ask them to check your vit D level. Tell me it isn't below 20 nanogram per mL. Which is almost half of what it should be.

I also encourage you to do your own research. I'd love to have someone else share their feelings.

Again, I believe wholeheartedly this is preventable. We were never made to consume dairy, this is the result. So your best fight is to build the armor with vitamin D which is what every type1 is shown to be CRAZY deficient of at the time of diagnosis.

You can do it brother

EDIT: As I type this laying in bed I think ****, none of you are gonna listen to me. Then I also think what if one Dad reading takes it to heart and his family makes a change maybe that was my purpose here

I'm reading and listening...

clemsonjeep said:

I'm reading and listening...

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I love ya brother and I love your kiddos. For some reason I spend what feels like all of my energy on educating myself about the body and type1.

More than anything because of how bizarre it was to hear 3 doctors and a specialist say "We don't know how you get it, where it comes from and you can't prevent it". I'm callin bullshit

I only spent a little over a month reading, not googling, studies and clinical trials published by only a handful of biologists who are even researching type1 super hero condition and I have already found the source of what causes it and connecting the dots when it happens. Most of it actually came from cancer research, where the studies weren't even looking for type1, yet there it was.

It's all there in front of us. Nobody really cares though until you live type1. Even then I'd argue that most don't have the time and energy to make a change. Since we homeschool we get a unique opportunity to see under the microscope.

Shoot my own wife and teenager are buckin me.

Hey I'm gonna make a difference, until Lilly pharmaceuticals lures me into a hotel in Vegas and shoots up a concert venue and blames it on me being crazy about type1

I'll add this. Could it be unrelated? Sure but here it is

In September 18 my daughter got a high fever. It lasted 10 days. The day before the fever started we ate local BBQ. She wasn't super hungry and doesn't really like the place.

The kid ate almost a full plate of cottage cheese and a roll that's it, that had been sitting on the buffet.

My wife knew this because she called the BBQ place and the guy got all pissed off. Lol

So fast forward to Feb we are in the hospital with type1

We have been building a house, kid has spent 4 months on the couch, face buried in a tablet. We too busy to go to the park

Just sayin, 57 years of data stored on studying cancer and type1 and our experience is spot on with the findings?

Then multiply that by millions all over the world, coincidence?

Sheeeeit

LightBnDr said:

Ask her what time of year she went to the hospital?

As you should be. I'll share what I've found with you in hopes it will inspire you to make a change.

I believe 100% that it is preventable. I'm really starting to feel in my gut and I'm positive I will discover the data that the hereditary link is actually a vitamin D deficiency. Which makes the pancreas vulnerable to the attack of the T cells that are released by the thymus.

So in short, it's the bacteria protein from dairy that gets into the blood stream and is the infection, causes the fever and normal white blood cell build up and attack. Then it's the weak organ and cell protection (that healthy levels of vitamin D protect against) that allows the T cells to attack the beta cells because they share the same signature that the T cells have been taught to recognize as the bacteria.

So truly putting your child on a 1,000iu per day and increasing to 2,000iu every other day Vitamin D especially in the winter time can make a huge difference in his or her or your chances of getting type 1.

If you are skeptical, go to the doctor and ask them to check your vit D level. Tell me it isn't below 20 nanogram per mL. Which is almost half of what it should be.

I also encourage you to do your own research. I'd love to have someone else share their feelings.

Again, I believe wholeheartedly this is preventable. We were never made to consume dairy, this is the result. So your best fight is to build the armor with vitamin D which is what every type1 is shown to be CRAZY deficient of at the time of diagnosis.

You can do it brother

EDIT: As I type this laying in bed I think ****, none of you are gonna listen to me. Then I also think what if one Dad reading takes it to heart and his family makes a change maybe that was my purpose here

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I remember that she told me it was close to Christmas, so maybe early-mid December. She told me that she was initially feeling sorry for herself while laying there in the hospital, and her mother told her that some kids in the hospital were not going to get to go home for Christmas.

My son doesn't like milk anymore. He drank a ton of it from around 6-12 months to maybe 3-3.5 yrs old, then quit. He never drinks it, so he hasn't consumed much dairy over the past 5 yrs. He does like mac n cheese though and typically eats it twice a week.

He takes two gummy vitamins every morning, and has for many years. I'm going to check tonight to see how much vitamin D is in them.

Thanks for all the information you have posted.

I don't see that having Type I diabetes has held my wife back at all in life. She has had it 32 yrs now. She has a masters degree in nurse anesthesia, and works full time. She was obviously pregnant and gave birth to a healthy son while working the whole time she was pregnant. We have gone white water rafting together, surfing, hiking and biking all over the place. We just have to go prepared. Hopefully that makes you feel a little better about your kids future. I do worry about my wife in the long term though, but her A1c is always good, and has always been good due to her tight control.

My daughter is doing great. I'm sure I'm struggling with all of the same parental feelings that any parent feels. Only diff is I like to express them in detail to complete strangers. Lol

I'll say this, we have actively cut dairy hardcore in our house and lifestyle. We all take 2,000iu plus of vit D per day.

My 6yr old is taking 1200iu. We have cut her Lantus in half and she almost needs diluted .5ml of humalog. Against my will the kid had a HUGE scoop of chocolate chip iced cream today with her friends. Dosed .5 and the kid was low at 64 about an hour later

I have been spreading word to every parent I know.

I get a look like "I don't give a flying F what you're talking about" Lol

I won't quit though. The number of kiddos getting super hero condition can be prevented and I want to do everything I can to help them.

Side note: I freakin love Mac n cheese. I truly believe that high vitamin D levels can and will prevent those who would otherwise be predisposed.

It's a 2 layer combination lock. Dairy is the infection, vitamin D is the cell protection deficiency.

I'll leave with this. A few biologists in Norway pulled bets cells from living type 1 pancreas's. Then type 1 pancreas's of dead cadavers.

They put all of these beta cells in a dish in the lab, separately of course, they introduced glucose to those beta cells.

They produced insulin immediately in reaction to the glucose. Within 48 hours they produced normal healthy levels of insulin in reaction to glucose.

All outside of the body away from white blood cells.

There's a way to fix this man. If I could fill my shop full of rats in cages and spend my life testing with them I would. Lol

Thanks brother for sharing. I love Kraft Mac n cheese

I just wanted to add an entry. I don't have a diary or anything and I learn new things daily. So I figured I could just store it here until I'm not allowed to log in anymore. Lol

We have been able stop dosing completely at lunch time. I would even argue that we could stop dosing at dinner time as well.

Have noticed drastic changes in blood sugar numbers since we eliminated inflammatory foods in our diet. Along with vitamin D.

Kids getting plenty of carbs, growing, feeling good. We changed to a lot of complex carbs along with as close to dairy free as possible. Substituted those dairies for unsaturated fat products. It's crazy tough.

She can eat a full bowl of Honey Nut Cheerios in the morning with no dose and never hit above 140 between until lunch. At lunch it's back at 78-105

Noticed that when we went out of town for the weekend and swam for 3 days solid in a saltwater pool, numbers were too low to dose all day long.

The kid had sprees, Honey Nut Cheerios, sips of sweet tea and some Polynesian sauce at chic fil a. (All because I wanted to experiment)

All staying in target, most times for a normal pancreas.

We gonna keep on rockin. Got a b day party coming this weekend full of cupcakes and junk food. Lol

Back to work, I'm gonna find a way to heal it

I was talking to some of my wife's family about this at our Easter thing last weekend.

All of them that are Type 1 are Vitamin D deficient.

LightBnDr said:

I just wanted to add an entry. I don't have a diary or anything and I learn new things daily. So I figured I could just store it here until I'm not allowed to log in anymore. Lol

We have been able stop dosing completely at lunch time. I would even argue that we could stop dosing at dinner time as well.

Have noticed drastic changes in blood sugar numbers since we eliminated inflammatory foods in our diet. Along with vitamin D.

Kids getting plenty of carbs, growing, feeling good. We changed to a lot of complex carbs along with as close to dairy free as possible. Substituted those dairies for unsaturated fat products. It's crazy tough.

She can eat a full bowl of Honey Nut Cheerios in the morning with no dose and never hit above 140 between until lunch. At lunch it's back at 78-105

Noticed that when we went out of town for the weekend and swam for 3 days solid in a saltwater pool, numbers were too low to dose all day long.

The kid had sprees, Honey Nut Cheerios, sips of sweet tea and some Polynesian sauce at chic fil a. (All because I wanted to experiment)

All staying in target, most times for a normal pancreas.

We gonna keep on rockin. Got a b day party coming this weekend full of cupcakes and junk food. Lol

Back to work, I'm gonna find a way to heal it

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I went to Bentonville Arkansas last year to ride bikes. We rode rough terrain and a lot of miles and it was HOT! I literally took no insulin for two days and I generally take in a day what your daughter takes in a month. With her being in her honeymoon phase and high activity rate, there will be days she won't have to take insulin but as her body adjusts to its new normal she will have to take insulin. Keep teaching her good habits and she will live a better, healthier life than most of us!!

I read 2 super interesting studies done on type 1 pancreas's. Both found that beta cells never stop regenerating. All the way to death. The cells die at a normal rate but regenerate in a non type 1 pancreas but in a type 1, obviously they systematically die faster. Faster than the pancreas can regenerate new healthy cells.

So what if your pancreas could regenerate beta cells faster than the cytotoxic T cells can program them for death?

Pretty much like a hyper beta cell generator.

Something is telling me that when cells are healthy, it's kinda like taking off coke bottle glasses and now they can see crystal clear what's really going on.

One of the biggest red flags to me is when you're diagnosed, the focus is not on changing your diet, it's about focusing on your diet for the sole purpose of numbers. There's no education on how to bring your body to a truly healthy state. Just keep feeding yourself dog **** then supplement it with lantus and humalog.

Then the introduction of man made substances. How do we know they aren't encouraging the beta cell breakdown? There is just so much more that the pancreas does than poop out insulin. I'm skeptical. Though I could be wrong.

Just to leave a bit of what's on my mind, there's always a way. I learned it early in my mechanic career. In the last 20 years I have forgotten how many times someone said it can't be done, 3 guys before you couldn't do it etc, I have proven so many wrong that it's my reason for questioning everybody and everything including their motivations for doing so.

It's why I don't have many friends but it's also why I'm a damn genius.

I'm gonna figure it out and just like Best and Banting I don't want anything in return but to heal kiddos and keep new kiddos from ever getting it.

I'm sorry I'm so long winded. This is my only outlet

Keep spewing....

Update spew:

We are 2 months in at 1200iu of Vitamin D.

We cut all the dairy in our diets that we could at this point. About the only diary we get is hidden in an ingredient deep inside a condiment. Which sucks

We are coming up on our first month of no Lantus.

First month of no dose at lunch time. Breakfast is .5 a unit.

We are 2 nights now without a dinner dose of .5 unit.

Average glucose last 30 days is 104